Message from the Ministry of Health, Malaysia l Message from MOS l Message from Pfizer Malaysia l Home
LEARNING ABOUT CANCER
WHAT IS MY ROLE AS A CARER?
CARERS AND THE MEDICAL TEAM
CARING FOR THE PATIENT
WHEN THE PATIENT’S HEALTH FAILS
PALLIATIVE AND ADVANCED CANCER CARE
DEALING WITH PRACTICAL & PERSONAL AFFAIRS
PRACTICAL TIPS
STORIES OF HOPE
LIST OF HOSPITALS IN MALAYSIA
SUPPORT GROUPS

 
 SUPPORT GROUPS

  For added support and advice, you may wish to contact the organisations mentioned below. Some have state branches or town chapters which are closer to you.

Amanita
Amanita is committed to helping women restore their appearance and selfconfidence after breast surgery, with several stores in Malaysia specializing in postsurgery supplies for breast cancerpatients and survivors, such as prostheses, lingerie, bras, swimwear and wigs. Amanita also offers nutritional advice, counselling and workshops on topics such as lymphedema and exercise.
Lot 1.06, 1st Flr, The Ampwalk,
218, Jalan Ampang, 50450 Kuala Lumpur
Tel : +603 2162 8215 Fax : +603 2163 6172
Email : info@amanita.com.my

Breast Cancer Resource Centre
Tel : 03-7949 2639

Breast Cancer Welfare Association (BCWA)
The BWCA is a self–help support group. Its members are breast cancer survivors, family members and friends of breast cancer patients, related professionals and volunteers who help provide psychological and emotional support, information and education.
5th Floor Bangunan Sultan Salahuddin
Abdul Aziz Shah, 16 Jalan Utara
46200 Petaling Jaya, Selangor Darul Ehsan
Tel : 03-7954 0133 Fax : 03-7954 0122
Email : info@breastcancer.org.my

Cancerlink Foundation
The Cancerlink Foundation provides care and support to cancer patients. Among its projects are the home-stay program based in Petaling Jaya, which provides free lodging for cancer patients and their family members, food and transport to the hospital for treatment. Counselling is available and entry is determined through hospital references.
13, Jalan Utara,
46200 Petaling Jaya, Selangor Darul Ehsan
Tel : 03-7956 9499 / 7957 9310 Fax : 03-7957 9310
Email : cancerkl@tm.net.my

Cancerlink Foundation
Perak branch
60A, Lintasan Perajurit 6,
Ipoh Garden East, 31400 Ipoh, Perak
Tel : 05-255 9906 Fax : 05-255 6164

Cancerlink Foundation
Penang Branch
2U, Lorong Delima 17,
Island Glades, 11700 Pulau Pinang
Tel : 04 659 3692 Fax : 04 565 2052

Cancerlink Society of Malaysia
Kelantan branch
B 1882, Lrg Sekilau 32,
Taman Pacific, Jalan Haji Ahmad, 25300 Kelantan, Pahang
Tel : 09-515 8539 Fax : 09-515 8539

College of Radiology
A society of professionals dedicated to being the national authority on radiology, clinical oncology and allied sciences by providing education, training, promoting research and to work with healthcare providers and educate consumers on the benefits and risks of therapeutic and imaging procedures.
College of Radiology
c/o Department of Biomedical Imaging
University Malaya Medical Centre 59100 Kuala Lumpur,
Tel : 03-7949 2093 Fax : 03-7958 1973
E-mail : secretariat@radiologymalaysia.org
www.radiologymalaysia.org

Hospis Malaysia
Hospis Malaysia is a charitable organisation established in August 1991 to address the need to develop and provide professional Palliative Care services to those who live within the Klang Valley. Their service help provide a more balanced, humane, equitable and economical approach to meeting the needs of people with lifethreatening illnesses, their loved ones and caregivers.
No. 2 Jalan 4/96,
Off Jalan Sekuci Taman Sri Bahtera
56100 Kuala Lumpur Tel : 03-9133 3936
Email : info@hospismalaysia.org
www.hospismalaysia.org

Hospis Klang
03-3324-2125
Email: hospisklang@myjaring.net
www.hospisklang.org

International Union Against Cancer
International Union Against Cancer is a non-profit, non-governmental association of 262 programmes in 84 countries. One of its many programmes is Reach to Recovery International (RRI), a breast cancer support network which links breast cancer support groups all over the world.
www.uicc.org

IIUM Breast Centre
International Islamic University Malaysia
Jalan Hospital
25150 Kelantan,
Pahang
Tel : 09-5163799 / 09-5132797
Fax : 09-5178548

Johor Bahru Breast Cancer Support Group
Tel: 07-335 7211

Kasih Hospice Care Society
74, Jalan 14/29, Section 14
46100 Petaling Jaya, Selangor Tel : 03-7960 7424
Email: admin@kasih-hospice.org
www.kasih-hospice.org

Kelantan Family Planning
Association (breast cancer support)
4261-F, Jalan Kebun Sultan
15350 Kota Bharu
Tel: 09-743 2407 / 09-748 3323


Matahari
Lorong Maxwell 2, Jalan Maxwell
Off Jalan Tun Abang Haji Openg 93000 Kuching, Sarawak
Tel: 08-241 1137


Malacca Breast Cancer Support Group
2A, Jalan M8, Bukit Baru,
Taman Merbuk, 75450 Melaka
Tel : 06-284 8888

Majlis Kanser Nasional (MAKNA)
No. 26-3, Jalan 10/55A
Taman Setiawangsa 54200 Kuala Lumpur Malaysia
Tel : +603 4256 9178 / 79 Fax : +603 4256 9203
Email : makna@makna.org.my

Malaysian Breast Cancer Education Project (MBCEP)
The MBCEP grows out of a need for Malaysian women and their families to have chance to gain knowledge about breast cancer. The project is a collaborative effort between Cornell University (CU) NY, USA and the Universiti Putra Malaysia (UPM), Malaysia.
www.breastcancermalaysia.org

Malaysian Oncological Society (MOS)
MOS is a medical society consisting of oncologists, physicians and surgeons. Its mission is to provide continual education, updates and expert advice to fellow doctors and the public, in the interest of improving the level of care for cancer patients.
Malaysian Oncological Society
Unit 13-01, Amcorp Service Suites
Menara Melawangi, Pusat Perdagangan Amcorp
18, Jalan Persiaran Barat, 46050 Petaling Jaya, Malaysia
Tel/Fax : 03 - 7960 0177
Email : info@malaysiaoncology.org
www.malaysiaoncology.org

National Cancer Registry, Malaysia
The National Cancer Registry (NCR) is supported by The Ministry of Health (MOH) to collect information about cancers in Malaysia, which will enable us to know the incidence of cancer and to evaluate the risk factors and treatment available in the country. This information is useful in assisting MOH as well as nongovernmental and private organisations in raising awareness on cancer and improving treatment for patients.
www.crc.gov.my/nrc

National Cancer Society of Malaysia
The National Cancer Society of Malaysia is dedicated to preventing cancer, saving lives from cancer and improving the quality of life of those living with cancer through patient care and education.
66 Jalan Raja Muda Abdul Aziz
50300 Kuala Lumpur
Tel : 03-2698 7300 Fax : 03-2698 4300
Email : contact@cancer.org.my
www.cancer.org.my

The Society also has branches in Penang, Ipoh (Perak), Seremban (Negeri Sembilan) and Johor Bahru (Johor) and Sarawak.

Pahang Breast Cancer Support Group
7352, Taman Rotan Tunggal,
27600 Pahang
Tel : 09-355 6895

Penang Breast Care Society
c/o Mount Mariam Hospital, Jalan Bulan,
Fettes Park, Tanjong Bungah 11200 Penang
Tel : 04-890 7044 Fax : 04-657 0959 / 04-890 1583
Email : penangbreastcare@yahoo.com

Persatuan Pink Champion Perak
c/o Sumithra Surgical Clinic,
Suite 217 Hospital Pantai Putri,
126 Jalan Tambun, 31400 Ipoh, Perak
Tel : 05-548 4333 ext 3821 / 3822 Fax : 05-545 8168

PRIDE Foundation
PRIDE Foundation (Pink Ribbon Deeds) is a charity body that aims to enhance awareness efforts and improve accessibility to treatment and care of breast cancer at all levels of society. Its incorporation is a tribute to the late Datin Paduka Seri Endon Mahmood’s courage, resilience and strength in her fight against breast cancer. PRIDE is committed in its efforts to create a positive environment where knowledge, treatment and support on breast cancer are readily available to everyone.
7th Floor, Wisma KLIH
126, Jln Bukit Bintang 55100 Kuala Lumpur,
Tel: 03-2144 9932 / 9952 Fax: 03-2145 2445
E-mail: info@pride.org.my

Sabah Family Planning Association
Breast Cancer Support Group
Jalan Kebajikan, Kota Kinabalu, Sabah
Tel : 088-245 209 / 088-222 703

Sarawak Breast Cancer Support Group
C/o. klinik Satok
22F Lorong 12, Jalan Rubber 93400 Kuching, Sarawak
Tel : 08-241 4994 Fax : 08-225 0910

Segamat Breast Cancer Support Society
34, Jalan Nagasari 7,
Segamat Baru, 85000 Johor

Terengganu Rakan Cakna
Persatuan Perancangan Keluarga Terengganu
12-G, Jalan Engku Pengiran Anom 2 20300 Kuala Terengganu, Terengganu
Tel : 09-622 1763

Online Resources

There are also foreign-based organisations which provide useful information on dealing with cancer and how to be a carer. These offer you the opportunity to learn from others across the world who also may be carers like you.

American Cancer Society
The American Cancer Society (ACS) is a nationwide community based voluntary health organisation. Headquartered in Atlanta, Georgia, the ACS has state divisions and more than 3400 local offices.
www.cancer.org

Cancer Information Network
The Cancer Information Network is a non-commercial site founded to provide support and information to cancer patients and their caregivers. It is founded on the belief that pro-active patients who educate themselves to take an active role in decisions regarding their therapy can affect their outcome in a positive way.
www.cancerlinkusa.com/support

Cancer Support Association Australia
The Cancer Support Association of Western Australia Inc was formed in 1984 by a small group of individuals who share the common bond of either had or have cancer, or having a loved one with cancer. Over the years, this need for a cancer support group was broadened to include a greater choice of wellness and healing strategies and to provide timely access to quality information, enabling a more Online Resources inclusive and holistic approach to cancer care.
www.cancersupportwa.org.au

CancerHelp UK
CancerHelp UK is a free information service about cancer and cancer care for people with cancer and their families. We believe that information about cancer should be freely available to all and written in a way that people can easily understand.
www.cancerhelp.org.uk

European Cancer Patient Coalition
The European Cancer Patient Coalition has been established to represent the views of cancer patients in the European healthcare debate and to provide a forum for European cancer patients to exchange information and share best practice experiences.
www.cancerworld.org/CancerWorld/home.aspx?id_stato=1&id_sito=9

Leukaemia Society of America
The Leukaemia & Lymphoma Society is the world’s largest voluntary health organisation dedicated to funding blood cancer research, education and patient services. The Society’s mission: Cure Leukaemia, lymphoma, Hodgkin’s disease and myeloma and improve the quality of life of patients’ and their families.
www.leukemia.org

National Childhood Cancer Foundation
CureSearch represents the combined efforts of the Children’s Oncology Group (COG) and the National Childhood Cancer Foundation (NCCF), two organisations united by a common goal: finding a cure for childhood cancer.
www.curesearch.org

Ovacome (UK Ovarian Cancer Support Network)
Ovacome is a UK-based support group for all those concerned with ovarian cancer, involving sufferers, families, friends, carers and health professionals. It aims to: share personal experiences, link sufferers, provide information on treatments, screening and research and raise awareness of the condition.
www.ovacome.org.uk

People Living With Cancer – ASCO
People Living with Cancer, the patient information website of the American Society of Clinical Oncology (ASCO), is designed to help patients and families make informed healthcare decisions. The site provides information on more than 85 types of cancer, clinical trials, coping, side effects, a Find an Oncologists database, message boards and much more.
www.plwc.org/portal/site/PLWC

The Lymphoma Research Foundation of America
The Lymphoma Research Foundation of America (LRF) is the United States’ largest lymphoma-focussed voluntary health organisation – devoted exclusively to funding lymphoma research and providing patients and healthcare professionals with critical information on the disease. LRF’s mission is to eradicate lymphoma and serve those afflicted by the disease.
www.lymphoma.org

The Cancer Index
This is a list of useful websites providing up-to-date and authoritative on cancer information. The sites cover a wide range of topics that would be helpful to patients, carers, healthcare professionals, family members and so on.
www.cancerindex.org

Willow Breast Cancer Support (Canada)
Willow Breast Cancer Support & Resources Services provides timely access to information, compassionate support, facilitator training and psycho-social education to people with breast cancer, their families and friends and healthcare professionals.
www.willow.org

References:
  1. What Can I Do To Help?; Deborah
    Hutton, short books, UK, 2005

  2. Caring For Someone With Cancer; Toni
    Battison, Age Concern Books, UK, 2002


Websites:
 

 
A Community Service Project by: Malaysian Oncological Society and Pfizer Malaysia - (latest update: 24-02-2011)